My name is Svetlana, my son Dana is 6.9 years old. We are diagnosed with infantile cerebral palsy (ICP), spastic paraparesis of the lower extremities, retardation, general speech underdevelopment of the 1st degree. We are from Vishnevy, Ukraine. In February, we completed 9 treatment cycles.
The baby was born on time, at 40 weeks, the birth was urgent, rapid. After birth, we were immediately transferred to the neonatal pathology department, from where we were discharged with a diagnosis of hypoxic-ischemic brain damage. After discharge, we were immediately registered with a neurologist. Then began constant trips to various specialists, examinations, analyzes, MRI, taking all kinds of nootropics: Ceraxon, Semax, Cerebrolysin, Cerebrocurin, Cortexin, Noofen.
We went through three cycles of treatment in the Martynyuk center, there were improvements, but not significant ones. At 1.2 yo he began to sit, at 2.6 yo he could walk with support. We were registered with a geneticist in Okhmatdet, as there was a suspicion of a genetic diagnosis. We did chromosome analysis, tandem blood mass spectrometry, urine screening – everything was normal. From birth, they constantly took massage courses, from a year and a half they began to study with a speech therapist.
Until the age of three, we were diagnosed with a syndrome of motor disorders, and at three we were already diagnosed with cerebral palsy with all the consequences: spastic paraparesis of the lower extremities, cerebral palsy, general speech underdevelopment of the 1st degree. At three and a half, we began to visit a rehabilitation center, where we met our mother, Yulia, who advised us to go to Dnipro. I immediately sent the documents, we were invited for a consultation. In February 2016, she underwent the 1st cycle of treatment, Dana was then 3.7 years old.
At the time of the start of treatment, we had a lot of complaints:
And there are many other things that you cannot remember now.
The first cycle dragged on in us for a month, because the child got sick during treatment and we were sent to another hospital. We spent four days there and continued treatment again. For me, the first cycle was the most difficult mentally and physically, there were several times the desire to give up everything and leave, but the thought that the child should be put on his feet forced me to overcome my emotions and continue further treatment.
After the first cycle of treatment, Danya learned to eat on his own with a spoon, drink from a cup, stopped throwing everything on the floor, began to walk on his own, tried to run, and climb the stairs. Physically stronger. Sleep improved, woke up less often, less toss, and turn in sleep.
After the second cycle, Danya began to ask for a potty, go to the toilet on his own, pee like a man, nocturnal enuresis left. With each subsequent cycle, Danya developed, got stronger physically, fine and gross motor skills improved, a pointing gesture appeared, stopped grinding his teeth, auto aggression slowly disappeared (he stopped biting his legs and banging his head against the wall). The eyes stopped squinting and the pupils were aligned.
Today we have such achievements: Danya himself knows how to undress and dress, everything except zippers, buttons, and laces. Knows how to put on Velcro shoes. He runs very fast, crouches, rises and descends the stairs himself. He is interested in everything, notices small details, something is broken, something is missing.
Good visual memory mastered the phone a little, can find what interests him by the picture himself. After the current cycle of treatment, our passive speech has become much better, everything is trying to repeat. Active speech has also become better, a lot of new words appear, trying to form sentences: “mom give, mom drink, Aunt Yana” and more.
Answers questions, so far only “yes” or “no”. He loves to help and gets angry if he is forbidden. Perseverance has appeared a little, he loves to draw, while mostly “hand in hand”, but he also tries to draw himself, now we have outlined the walls, window sills, a table.
Plays with toys as intended, rolls cars, adds constructor, puzzles. Previously, I put everything in a row or twisted everything. We calmly ride in transport, go shopping, walk on the street. Of course, we still have a lot to learn, but what we already have is very, very much.
I would like to advise other mothers who have children with similar diagnoses – cerebral palsy, spastic paraparesis of the lower extremities, cerebral palsy, general speech underdevelopment grade 1, and similar, so that they do not give up and give their child a chance for recovery. You need to work and deal with them every day, and the result will definitely be there.
Thank you very much Vagif Mamedovich, I am sincerely grateful to you!
Call, I will answer everyone.
Svetlana and son Danya, Vishnevy, Ukraine